Blog: New local support group for people with rare brain condition

2012-09-26T10:15:00Z 2012-09-26T11:14:26Z Blog: New local support group for people with rare brain conditionStephanie Innes ARIZONA DAILY STAR Arizona Daily Star
September 26, 2012 10:15 am  • 

After the Star ran a story about Heather Thrall Roscoe and Jackie Boorse and their struggle with a rare neurological disorder yesterday, the women formed a support group.

Though idiopathic intracranial hypertension occurs only in one or two per 100,000 people in the general population, the article prompted several people in the Tucson area to reach out to Thrall Roscoe and Boorse.

Thrall Roscoe and Boorse say until this week, they had never met anyone else with the condition outside of each other.

So when they heard from others following the article they decided to take action and form a group.

Here is the Facebook page link:

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Arizona Daily Star health reporter Stephanie Innes brings you the latest health information. Contact her at

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